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End of Life Care for Infants Children and Young People

This guideline covers the planning and management of end of life and palliative care in for infants, children and young people (aged 0–17 years) with life-limiting conditions. It aims to involve children, young people and their families in decisions about their care, and improve the support that is available to them throughout their lives.

  • Section 1.1.6 covers grief support for siblings, including understanding the grief of others in their family.
  • Section 1.4 covers care and support for parents and carers around the death of their child

Published by: National Institute for Health and Care Excellence